When she first entered the hospital, she was told it wasn’t bad at all.  She could go home in 3 days.  After she refused the vaccine, we got the call about filling out the living will and the paperwork for who’s in charge of what. They also asked about hospice.  We were shocked.  They scared her.  We went to fill out the paperwork, and they let us suit up and go in the room.

She was on the Bi-pap mask and slumped down in the fetal position.  There was a tray of cold food sitting to the side.  She was so excited to see us.  We visited for awhile, and got the papers filled out.  Her oxygen was in the mid 80s. I asked her why she wasn’t sitting up so her lungs could stretch out so she could breathe.  She answered, “I don’t know.”

I had to get the nurse (who fussed about helping) to help me sit mom up, and her oxygen level went up to high 90s. She asked the nurse why she didn’t know to sit her up. She said she knew, but she just didn’t do it.  I asked her about eating, and she said she hadn’t gotten to eat because she couldn’t remove the mask by herself.  Then nurse even told me, it’s easy to do, but since she can’t do it, she doesn’t eat.

We complained to her worker and advocate and the hospital head.  Also, while we there we had to help her with the bed pan.  The nurse came in 45 minutes after we called and told her she needed to pee.  We told her we already took care of it, but her colostomy bag was getting full and needed changing. I went over and looked at the computer and saw she had a respiratory treatment scheduled.  I asked about it. The nurse said they hadn’t done them earlier because they forgot, but they would make sure that one got done.

We spoke with the doctor and asked for plasma to be given because we knew it hadn’t been given yet.  We asked for Hydroxychloroquine,  monoclonal antibodies,  and Ivermectin.  The doctor told us none of it was scientifically proven and was all fake news.  I told him we knew differently.  We have friends that were saved by those drugs. He said this hospital doesn’t give them. (We have since found out, it was actually the protocol to give the plasma and that other doctors at that hospital gave monoclonal antibodies to people we’ve met.)

We ordered her some soup for dinner and went home. They called and said they were moving her to PCU on a different floor so she would have better care.  I called that night and talked to her and the nurse.  They never brought her soup or did the treatment.  From then on through the rest of the time she was there, we were on the phone with the transfer team, head of the hospital, the COVID-19 research team at Vanderbilt hospital, her advocate, every day – 2 to 3 times a day.

She ate breakfast the first day in PCU because a nurse helped her with the mask.  After that, no more food.  We brought her Sprites to drink, so she would get to drink something.  The head of the hospital gave us special permission to go see her because we were complaining daily about everything.

One of the nurses spilt water on her phone and ruined it, so we bought her another one.  I went there and visited with her, and transferred everything over to her new phone.  While I was doing that, I spoke with the nurse who told me that the doctor who told us it was fake news, had his own agenda and that it was hospital protocol to give the plasma.  He put in the computer that we asked for it again.

We got a mobile notary a couple days later to come up and mom signed the POA turning everything over to Kurt because she sold her house, and he needed to sign the papers. Her oxygen was in the 80s. She was cutting up and talking to us and said she felt better, but the tests showed she was worse.

We were still having problems with nurses. This is when Kurt said, “I demand you do something different because whatever you’re doing doesn’t seem to be working.  We are trying to move her to a different hospital because of it.” The nurse told him she could call security if he continued to talk like that. This was July 29th.  Right after that, they moved her to ICU stating she was good, and it would be 4 or 5 days before her oxygen would go up or down.  The rest is in an earlier answer.

I will add that the doctor who put her on the vent was very rude and bullied all of us even flexed up over Kurt like he was gonna hit him when Kurt told him that he wasn’t happy with how things had been done…